I will have a CT Scan on Monday morning at 8:30 at Methodist hospital. I'm glad this is moving so quickly. As Brittany reminded me:
I have a tumor, I have a tumor
The doctor's gonna take it out.
(Sung to the tune of I heard a Rumor, Bananarama circa 1990?)
I will be happy to get rid of the constant reminder in my ear. If I was a superstitious gal, I'd think it was my conscience trying to tell me something. But, I'm not, so I guess it's just blood flow.
Hope everyone has a great weekend.
J
p.s. I will start posting some pics soon. I know that no one wants to read a blog with no pics. I'll work on that.
Friday, June 27, 2008
Tumor Update
Posted by Jennifer at 2:47 PM 1 comments
Thursday, June 26, 2008
What's that about a soda-cat?
So, we live on a cul-de-sac. This is a very proud place for our family to be. Evie also takes pride in it. At, the age of 4, Evie was happy to share this information with others. She would proudly exclaim that we lived on the "soda-cat." I totally understand her logic, and that's why I'm her mama..or momo.
J
Posted by Jennifer at 10:45 AM 4 comments
Naming Rights
I bet when you named your children, that you did not realize just how many ways that name could be pronounced. As I sit here, trying to enjoy my last few bites of yogurt and blueberries (really a treat), I am interrupted by "Aidenunun." I mean, really, that's not his name. And what is his rebuttal, but "E-V!!!" You know, in that super angry voice.
I love summer. Really I do.
Enjoy your day.
J
Posted by Jennifer at 10:22 AM 1 comments
Monday, June 23, 2008
It's not a tumor!
Well, maybe it is.
Ok, so I've been complaining for awhile now about a roaring in my left ear. It started as just annoying. As it progressed (i.e. the roaring is now ALWAYS present) I started to be concerned. I finally saw and ENT about it today and my doctor thinks it might be....(drum roll please)......a tumor.
Now, before any of you become alarmed, the type of said tumor is benign. But, it still has to be removed. This leaves me most worried about...will I have to get an i.v.? People are not good with me and i.v.'s. And, if I have the surgery where they go in behind the ear and not in it...I bet I won't be able to wash my hair for a few days. And that's just really gross for me. I mean my hair gets NASTY. And, I won't be able to work out. I might as well start eating brownies now.
So, my possible diagnosis is Glomus Tympanicum. Apparently, it's only a 1 in 1.3 million condition. I suppose that's why none of us has ever heard of it. There is also a second possible diagnosis, which is Dehiscent Jugular Vein. This second option requires no surgery, no nothing. Just for me to live the rest of my life with a persistent roaring in my ear, and oh yeah, forgot to mention hearing loss as well (which apparently I do have).
I've googled the above in case anyone cares to read what this is.
Glomus TympanicumIn case anyone is interested in seeing a pic of this tumor, look here. I
Glomus tumors grow from small collections of nerve-derived cells (glomus cells, also known as glomus bodies). These special cells are found in the walls of certain blood vessels and along nerves. Glomus bodies are chemoreceptors, which means that these cells can detect chemical changes in the blood. Normal glomus cells also make hormones (similar to adrenaline) that can be released into the blood stream.
Glomus tumors are typically slow growing tumors that grow along paths of low resistance. As such, glomus tumors may grow inside nerve canals, along blood vessels, and inside the eustachian tube (the tube that connects the ear to
the back of the nose). These tumors also have a very rich blood supply.
Symptoms
Glomus tympanicum tumors develop inside the middle ear. The most common symptom is that of a pulsing sound as blood flows through the vessels of the tumor (pulsatile tinnitus). Other symptoms of a glomus tympanicum include a conductive hearing loss (caused by the tumor blocking sound transmission through the middle ear), ear pain and bleeding from the ear.
Diagnosis
Diagnosis is made based on the patient's symptoms, physical examination findings and a combination of tests. A common physical examination finding is that of a reddish/bluish mass behind the ear drum (tympanic membrane) (see Figures below). A hearing test and computed tomography scan (CT) are performed routinely. CT is needed to determine the size of a tumor and the relationships of the tumor with structures within the ear. CT tomography is also useful because it can see small erosions or openings in bone.
Treatment
The vast majority of glomus tympanicum tumors are treated with surgical removal. Small glomus tympanicum tumors are removed through incisions confined to the ear canal, while larger glomus tympanicum tumors are removed through an incision behind the ear. Surgical removal of glomus tympanicum tumors is typically performed under general anesthesia on an out patient basis (same day surgery). The chance of recurrence is quite low if the tumor is completely removed.
refuse to post that picture on my blog.
The second diagnosis option is a Dehiscent Jugular. Not really as sure about that one. There is not so much about it on the web - only med speak.
So, my next step is to get an special kind of X-ray where apparently this little tumor will "light up" like a young starlet on Broadway.
I guess it's good to know. I just want to get this over with.
I'll keep you posted.
Jen
Posted by Jennifer at 9:54 PM 1 comments
VBS 2008
Well, another year has passed for VBS. This has been my third year to volunteer, and subsequently the third year for my kids as well. For those of you not familiar with the inner working of VBS, a typical may look like this: morning assembly (singing, dancing, stories and jokes), games, Bible story time, crafts and theater time (where they always watch a story about a disturbing chipmunk named Chadder) ending the day with final assembly. The day lasts from 9a to noon.
I think this was the best year for all of us.
This was Evie's first year to be in the elementary production - and quite a production it is. For the first year, Aiden enjoyed himself. And this was the first year for Sadie to participate. I love sneaking peeks at them throughout the day - especially when they're dancing. It seems you can learn a lot about your child when they don't know they're being watched.
I learned that Evie is good at being part of the crowd. She's the kind of kid that really gets the most out of a big event like this. I learned that Aiden really needs that one-on-one reasoning time. He also has a big heart for those who are willing to be firm with him. And, my Sadie, she only confirmed what I already knew. She just wants to be held and loved on periodically through the day. It didn't even matter who it was.
It is the sweetest time to see how God speaks to each child differently and how He growing a faith in each of them.
I'll try and post some pics a little later.
Jen
Posted by Jennifer at 9:39 PM 1 comments
Wednesday, June 18, 2008
My favorites from Ellie Krieger
Ok, all. This is my attempt to start a blog. I always have so much going on in my head and my life...maybe I can type some of it out here.
Posted by Jennifer at 2:14 PM 1 comments